Friday, 25 April 2014

Word of the Week

This is Tom.
Tom was born at 36 weeks.
Tom stopped growing just after 30 weeks.
At 10 weeks Tom was admitted after an ultrasound, he had pyloric stenosis.
A few days later he had surgery.
I crumbled.

Tom has always been my soldier.
Always poorliest, first, and for longest.

On the occasions we take him to the GP they will detect his heart murmur. And ask us to bring him back healthy for a second check. Where they would tell us he is fine.
It is repetitive.

At a referral to a paeditrician a second opinion on a niggle, the heart murmur was identified at full health.
We were asked if we would mind going for an ECG. We did. And we went home.
We waited.

Today, we had an appointment with a cardiologist.
Another ECG.
An ultrasound of Tom's heart.
Tom, in proud possession of a photograph of his heart.
The Cardiologist confirmed. Tom has a heart murmur.
And then specifically.
Tom has an innocent heart murmur.
Everytime he has a temperature, his heart rate changes, and the murmur becomes more apparent.
There is nothing to be concerned about.
From now on, everytime a GP finds it, we can tell them what we know.

The week started with Easter.
Our Puppet Ministry was warmly welcomed at Easter Service.
We had our first Easter Egg hunt in the garden.
I spent a lovely Easter Monday with the children at a local fruit garden.

With a mid week blip, as events caught up, and the worry of Friday built.

This is my word of the week:

The Reading Residence

28 comments:

  1. Great word. I'm glad you have some information that gives you peace and confidence. It must have been so worrying x

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    1. Thank you. It's been so difficult to have something you can't do anything about, but 'phew' it's over. x

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  2. Such a lovely word and Tom looks absolutely adorable. It must be such a worry for you.

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    1. Thank you. It's so good to be out the other side.

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  3. lovely word, glad that what they found gives you some peace that he's ok x

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    1. Thanks x It's so good to move onto the next chapter.

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  4. So glad that the findings were good although I can only imagine how worried you have been

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    1. Thank you x It's such a relief to be out the other side.

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  5. Sounds like you've been through a lot! But at least you know now that its nothing to be too worried about! Good word to sum it up!

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    1. It's been odd as we didn't instigate it- to have a worry which is so out of control. So good to know we can move on!

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  6. Lovely post, and what a very appropriate word to choose. I'm glad you've got an explanation and an innocent one too x

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    1. Thank you. I am now loving the word 'innocent' more than ever.

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  7. Lovely word and post. What a relief to have those results and explanation now. I do love how is has his scan in his hand there too. Thanks very much for sharing and joining in with #WotW x

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    1. Thank you x And thank you for running such a great linky. I'm looking forward to joining in regularly.

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  8. Aw so pleased all turned out well... What a relief! :)

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  9. Aww! Lovely word....
    You must be so relieved x

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  10. So wonderful - such a relief. I'm desperately hoping for similar on Thursday, eldest has suspected HCM and a murmur with abnormal ECG. Thursday is 2nd ECG and echo. So delighted for you :)

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    1. I will be thinking of you and hoping for a good outcome. x

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  11. Such fabulous news! f was taken in for a heart murmur check which turned out to be fine but the wait had me scared witless. So happy for you. x

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    1. Thank you! You are so right, it really is the knowing you can do nothing which creates so much added pressure.

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  12. Great post! lovely to see photo's of Tom with his scan photo x #WotW

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  13. Great word and lovely post. Blessed you truly are x

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  14. Lovely post, glad he has been checked and everything is fine. He looks very proud of his scan

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  15. This is a lovely post. Something with a lot of meaning and something which turned out so positive x

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  16. That's amazing news - I can imagine your relief x x

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  17. Perfect word. So many of us forgets that to a point we are all blessed

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